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‘Endometriosis is a slow, living death for many women’

2026-06-02 17:40
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‘Endometriosis is a slow, living death for many women’

Emma Barnett has made Britain's first TV documentary exclusively on the topic.

‘Endometriosis is a slow, living death for many women’ Charlotte Minter Charlotte Minter Published June 2, 2026 6:40pm Updated June 2, 2026 6:43pm Share this article via whatsappShare this article via xCopy the link to this article.Link is copiedShare this article via facebook Comment now Comments

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Broadcaster Emma Barnett was diagnosed with endometriosis 10 years ago, three months before she started at the BBC, and has been severely impacted by it.

Now, she has made the first British TV documentary focusing exclusively on the illness.

Considering it affects an estimated one in 10 of reproductive age women worldwide, this statement is staggering.

‘I don’t think people even know how to spell it still,’ Emma admitted to Metro.

In her hour-long programme, Emma Barnett: Fighting Endometriosis, she shines a light on the condition by speaking to women struggling with it, picking the brains of specialists and grilling former health secretary Wes Streeting.

Emma also shares her personal journey through self-recorded videos where she candidly talks about her pain as it’s happening.

TX DATE:01-06-2026,TX WEEK:22,EMBARGOED UNTIL: 00:00:00,PEOPLE:Emma Barnett, Wes Streeting,DESCRIPTION:Emma interviews Wes Streeting, Secretary of State for Health and Social Care following the renewed Women's Health Care Strategy,COPYRIGHT:Raw Media Productions,CREDIT LINE:BBC/Raw Media Productions Emma has a frank conversation with the then-Health Secretary, Wes Streeting (Picture: BBC/Raw Media Productions) TX DATE:01-06-2026,TX WEEK:22,EMBARGOED UNTIL: 00:00:00,PEOPLE:Emma Barnett,DESCRIPTION:Emma while interviewing Contributor, Chloe Bremner in Edinburgh,COPYRIGHT:Raw Media Productions,CREDIT LINE:BBC/Raw Media Productions The former Newsnight presenter gets emotional hearing stories from women about their endometriosis (Picture: BBC/Raw Media Productions)

‘On a serious note, those home videos have really held me to account. I think I regularly airbrush my own life to myself, where I say: “That day was fine.” And actually now I’ve seen a video, I’m like: “Your birthday was a bit ropey, to say the least.”‘

The documentary shows starkly what this condition can take from women.

In her mid-twenties, 26-year-old Chloe was forced to make the life-changing decision about whether or not to have children, because of the agony she finds herself in.

Emma, who struggled to get pregnant herself, is visibly moved by Chloe’s story. She said: ‘Often I meet women whose fertility has been affected, and hers [Chloe’s] will be if she manages to go through with a hysterectomy.

‘But what she decided was even more extreme than that – she couldn’t even consider having children, because she wouldn’t be well enough to look after them. And that was of a whole other magnitude. 

‘Endometriosis is a thief. It steals from you. Sometimes it mugs you in broad daylight, and sometimes you don’t know what it’s taken until it’s gone.

TX DATE:01-06-2026,TX WEEK:22,EMBARGOED UNTIL: 00:00:00,PEOPLE:Emma Barnett, Chloe Bremner,DESCRIPTION:Emma meets contributor, Chloe Bremner in Edinburgh. Chloe has suffered so greatly with Endometriosis that she is considering a hysterectomy while still in her mid-twenties.,COPYRIGHT:Raw Media Productions,CREDIT LINE:BBC/Raw Media Productions Chloe says in the documentary that her life dramatically changed when she started her period (Picture: BBC/Raw Media Productions) Emma Barnett in press shot for her documentary on Endometriosis It’s the first British TV documentary exclusively focusing on endometriosis (Picture: BBC/Raw Media Productions/Ryan McNamara)

‘It might not be a life threatening condition in the way that, for instance, we obviously have to see things like cancer, but it is a living death for many, many women, and it’s a slow one.’ 

Despite the excruciating turmoil Emma might be able to feel inside her body at times, she talks about managing to get her ‘game face on’ at work.

The 41-year-old presents on BBC Radio 4’s Today and previously hosted Woman’s Hour for three years.

She quit the latter in 2024, and speaks about a time when she effectively blacked out during one of the live broadcasts, yet was able to produce an hour-long show: ‘There was a 75th anniversary of Woman’s Hour […] and my producer at the time looked at me just before we were about to go live.

‘And I think she thought: “Is she okay?” I cannot remember a single thing about that programme.

‘The pain was incredibly bad that day, but it was a great programme, I’m told,’ Emma laughed.

TX DATE:01-06-2026,TX WEEK:22,EMBARGOED UNTIL: 00:00:00,PEOPLE:Emma Barnett,DESCRIPTION:Emma on the Today programme,COPYRIGHT:Raw Media Productions,CREDIT LINE:BBC/Raw Media Productions Emma doesn’t remember anything from the 75th Woman’s Hour special, because of her pain (Picture: BBC/Raw Media Productions)

Responding to my incredulous reaction and explaining how those around her respond to the illness and vice versa, Emma explained: ‘What I do have, which I think helps colleagues and friends and family, is a very dark sense of humour, and I don’t know if it’s being a woman. I don’t know if it’s being northern.

‘I’m Jewish, culturally we try and make dark jokes, perhaps about bad things that happen just to try and get through. I don’t know, but I think that helps.’

While Emma’s ability to laugh during the hard times might be one way of dealing with the disease, her rage has been a driving force for her creating this documentary and seeking answers from those in positions of power.

She stated: ‘My anger in this film even shocked me when I watched it back. I am enraged and I am a woman who does have a difficult part of this condition. 

‘It’s got worse as I’ve got older, but I am able to work. Lots of women are not.

‘And I feel a huge duty now to represent as much as I can those women and put my journalism to use to show how this isn’t being taken seriously as the silent and invisible emergency that it is.’

TX DATE:01-06-2026,TX WEEK:22,EMBARGOED UNTIL: 00:00:00,PEOPLE:Emma Barnett, Justin Webb,DESCRIPTION:Emma and Justin on the Today Programme,COPYRIGHT:Raw Media Productions,CREDIT LINE:BBC/Raw Media Productions ‘I’m a live broadcaster. Typically you get your game face on, you go’ (Picture: BBC/Raw Media Productions) Wes Streeting looking at Emma Barnett during an interview. Flags in background. The former Health Secretary also spoke of his family member’s journey with the condition (Picture: BBC/Raw Media Productions)

In an interview with Streeting, Emma asks why there is no specific endometriosis pathway once women are diagnosed.

He responds: ‘Well, there should be, I think, is the simple answer to that.’

Laughing in what appears to be disbelief, Emma scoffs: ‘Well you’re the Health Secretary!’

The politician then assures her that ‘there are some improvements that are coming’, but the BBC presenter looks unconvinced.

Chatting ahead of the documentary release, Emma remarked: ‘The medical world in itself is hysterical and has hysteria when it comes to its lack of understanding of women’s bodies and its commitment to not understanding them until extremely recently.’

A clear example of that presents itself in the documentary through 35-year-old Mada, whose diagnosis for endometriosis took nearly 25 years of pain.

Emma Barnett sat with camel jumper on and white sleeves coming out of jumper arms. At table with cup of tea in front. Emma has two children, that she had through IVF (Picture: BBC/Raw Media Productions) Madalitso Phiri on hospital bed in gown, waiting to be operated on Mada was misdiagnosed multiple times before being told it was endometriosis (Picture: BBC/Raw Media Productions)

She had her appendix needlessly removed, was misdiagnosed with irritable bowel syndrome and found herself unable to get out of bed.

When asked what shocked Emma the most while making the documentary, she responded: ‘The fact that women’s bodies were seen as too complicated to even study until really recently because of that whole “womb thing.”‘

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Emma went on: ‘There has been this weird myth around endometriosis […] that it was somehow associated with women’s independence, intelligence, or, I’ve had said to me: “It does seem to always be with women who are very career focused” as if by being busy, I’ve brought this upon myself.’ 

As the documentary draws to a close, Emma talks about just ‘wanting her womb out’ because of the daily pain she is now experiencing.

On what it’s been like to consider a hysterectomy, Emma reflected: ‘It’s a bit of life imitating art, if I could put it like that. I didn’t expect it to be how it had become, and I’m still seeking medical advice on that. But I didn’t want to not be honest either. I wanted to say this is a very real thing for me as well at the moment.’ 

Emma Barnett: Fighting Endometriosis is available to watch on BBC iPlayer.

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